“Alzheimer’s just isn’t a cool disease”

I was watching C-Span2 this evening. (No groans allowed.) This isn’t something I normally do but my dad called me and said, “turn it on.”

So, I did.

The Senate Appropriations Subcommittee on Labor, Health & Human Services was conducting a hearing on Alzheimer’s.

Sen. Tom Harkin D-IA, Chairman appropriations Subcommittee on Labor, Health & Human Services was questioning Dr. Hurt, Dr. Collins, and Dr. Hodes from NIH (National Institutes of Health) about the disease.

In addition to the NIH researchers and doctors, Seth Rogen had been invited to speak. We normally think of Rogen as a goofy comic who makes some nonsensical  movies. What most people don’t know is that he has a golden heart.

Rogen’s mother-in-law was diagnosed with early onset AD at the age of 55. His ignorance of the disease mirrored that of society. In other words, he knew little. But, he quickly realized how devastating it is and that something must be done. So, he took it upon himself to create awareness.

With his self-deprecating humor he explained how he and his wife created Hilarity for Charity, a movement to “inspire change and raise awareness of Alzheimer’s disease among the millennial generation.”

Rogen is leading the effort to rally the college kids, to inject their consciousness with the severity of this disease, and how it will inevitably impact them.

When asked why he thinks Alzheimer’s lacks in funding, he reminded the committee that young men and women are not clamoring to pursue the study and science of Alzheimer’s because it doesn’t make the big bucks. He added that becoming a cardio doctor or a cancer doctor are more lucrative careers.

Then he quipped,

“Alzheimer’s just isn’t a cool disease.”

 

Ain’t that the truth!

Alzheimer’s is not cool. No one survives. Ever. And it will inevitably impact the younger generations.

I applaud Rogen for his efforts. It’s encouraging to see the young Hollywood clan jumping on the bandwagon of an uncool disease.

I have more to say about this in my next post. Meanwhile, what are your thoughts about Rogen’s statement?

Update 1: Read Rogen’s story in Glamour Celebs called “My Family Love Story.”

Update 2: “With my Senate testimony, I think, for one moment, Alzheimer’s became a trendy thing to be talking about, which is the first very small step. It’s not a glamorous disease. There are no success stories. There is a stigma: Only old people get it, so people in their twenties, with parents in their fifties who have it, feel weird talking about it.” –Seth Rogen

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2 thoughts on ““Alzheimer’s just isn’t a cool disease”

  1. It isn’t a “cool” disease. If you have not been impacted by it, it is hard to conceive how it will affect the patient, their caregivers and/or family. I think also Seth Rogan was furious because so few of the committee members were there for the meeting. I think he raised a little stink about it.

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